bell notificationshomepageloginNewPostedit profiledmBox

Hoots : Any cure for epidermolysis bullosa? My young cousing has this skin disease, and that's awful. Any possible cure for this disease? - freshhoot.com

10% popularity   0 Reactions

Any cure for epidermolysis bullosa?
My young cousing has this skin disease, and that's awful. Any possible cure for this disease?


Load Full (2)

Login to follow hoots

2 Comments

Sorted by latest first Latest Oldest Best

10% popularity   0 Reactions

There is no cure as yet, but there are some treatments being used or trailed that reduce the amount of blistering.

In America and Japan they do bone marrow transplants for the more severe cases (but it is highly risky, and not always effective).
There are various trials going on with creams at the moment for various sub-types of EB, for example for EB Simplex the Diacerein 1% ointment (CCP-020) and Allantoin 6% for RDEB.
Gene-corrected skin grafts e.g. A Dying Boy Gets a New, Gene-Corrected Skin

Also being researched but I've not seen the results for yet are

Research in stem cells
Research into culturing the patients own skin from areas where it does not blister and transplanting it back.
Protein replacement therapies
Cell-based therapies


10% popularity   0 Reactions

Sorry to say this, but epidermolysis bullosa doesn't have a cure, but there are ways to treat its symptoms. Medications can help control pain and itching and address complications such as infection in the bloodstream (sepsis). Prescription oral antibiotics may be used if you show signs of a deep or widespread infection (fever, weakness, swollen lymph glands).

An oral anti-inflammatory drug (corticosteroid) may help reduce the pain from dysphagia (difficulty swallowing). www.mayoclinic.org/diseases-conditions/epidermolysis-bullosa/basics/treatment/con-20032497. www.nhs.uk/Conditions/Epidermolysis-bullosa/Pages/Treatment.aspx


Back to top Use Dark theme